The Congress will start on the 25th April 2024 with a full-day session on genodermatoses aimed at including geneticists and dermatologists within the DEBRA community to raise awareness about incidence, and updates on management and research of orphan disorders, particularly EB, especially in the MENA region and Africa where consanguineous marriage is a still a tradition with an expected high incidence of these disorders.

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The Scientific Committee is co-chaired by Professors Peter Marinkovich and Ghada El-Kamah together with an eminent panel of expert dermatologists, geneticists, biologists, surgeons, and industrial representatives to discuss updates on research and appropriate therapy, minimisation of adverse events, and strategies to improve patient quality of life.

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Educational objectives:

• Review practice-changing data on the efficacy and safety of new and emerging therapies, and determining which treatments are appropriate for which patients.

• Efficacy data from practice-changing clinical trials on new and emerging therapies.

• Outline adverse events associated with novel therapies and approaches to mitigate these effects.

• Patients advocacy able to discuss their needs and whether fulfilled through novel approaches.

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Ultimately the meeting aims at establishing a network bridging gaps both on patient advocacy and on technology transfer levels to the MENA region and Africa.