The Congress will start on the 25th April 2024 with a full-day session on genodermatoses aimed at including geneticists and dermatologists within the DEBRA community to raise awareness about incidence, and updates on management and research of orphan disorders, particularly EB, especially in the MENA region and Africa where consanguineous marriage is a still a tradition with an expected high incidence of these disorders.
The Scientific Committee is co-chaired by Professors Peter Marinkovich and Ghada El-Kamah together with an eminent panel of expert dermatologists, geneticists, biologists, surgeons, and industrial representatives to discuss updates on research and appropriate therapy, minimisation of adverse events, and strategies to improve patient quality of life.
Review practice-changing data on the efficacy and safety of new and emerging therapies, and determining which treatments are appropriate for which patients.
Efficacy data from practice-changing clinical trials on new and emerging therapies.
Outline adverse events associated with novel therapies and approaches to mitigate these effects.
Patients advocacy able to discuss their needs and whether fulfilled through novel approaches.
Ultimately the meeting aims at establishing a network bridging gaps both on patient advocacy and on technology transfer levels to the MENA region and Africa.
Why you should join the event
25 - 28 April, 2024
Networking & Collaboration
Connect with a diverse and international community of dermatologists, geneticists, biologists, surgeons, allied healthcare professionals, industry representatives, and patient advocates.
Hear from renowned experts and professionals in the field as they share the latest research, breakthroughs, and insights related to epidermolysis bullosa (EB).
Holistic Approach to EB Care
Gain a comprehensive understanding on the patients' needs, and how we can improve on patient care and quality of life.
Make an impact and be part of bridging continents together to establish a network that will have a lasting impact, particularly in the MENA region and Africa.
Who should join the event?
Patients and families
Support and advocacy groups
Researchers, scientists, industry